https://bigskysoulshine.org/home daily 1.0 2026-03-18 https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1647027713154-TWUMIUP74VVOKA5RDELV/170622_174742__S027603.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/3a6d9470-dcdd-4aa3-94b2-97e9c0604513/SS26-tabloid-031126.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/07bef2e0-3cf9-477a-ac43-13cd390f488c/qr-code-2.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/b18a246b-f5a5-4078-9c66-acaa96c77e92/Screenshot+2025-04-25+at+11.10.14%E2%80%AFAM.png Home - PHOTO BOOTH & MECHANICAL BISON https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/ea93212c-5d35-420a-8f68-987ba7528129/170622_173120_DSC_8655.jpg Home - Food, drink, games, face painting, activities, inflatables, dunk tank, prizes, music, swing dancing and more! https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/67f562d9-5145-495b-b8ac-f8acd57fe636/18.06.21_SoulShine_352.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/070ef2ca-7779-4fac-8bbc-a0e0052724c3/170622_173200_DSC_8663.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/279a5921-c008-4d37-881d-72ab9ede0a30/18.06.21_SoulShine_235.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/7d1c1e06-3f27-45b8-b5f0-b528672d1219/tempImageJlr2Gz.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/f61a1e9e-d37c-4c56-9330-a3d27886778e/Screenshot+2025-06-26+at+12.49.53%E2%80%AFPM.png Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/4a219ec8-ea99-4c00-84d7-6013a94ab836/IMG_7993.jpeg Home - Make it stand out This is Dan Hoadley, his wife, Vanessa and their children, Claire and Nick. Claire is a recent Lone Peak High School graduate heading to Rocky Mountain College to study Occupational Therapy and Business with an athletic scholarship to play volleyball. Nick is a rising sophomore at LPHS and in addition to being his sister’s loudest cheerleader loves basketball, camping, working out and being outside. Dan is originally from Michigan but has called Montana home for the last twenty-five years. He is the head of IT for Boyne USA, managing his department for all of Boyne’s resorts across the country from his home base of Big Sky. For the past two years, Dan, along with his family has been navigating the effects of ALS. What this means to the Hoadley family is to stay close to one another, to spend quality time together with their close family and friends, to work and enjoy the outdoors in their free time, to take meaningful family trips and to support Claire and Nick in all of their endeavors. Big Sky Soul Shine and the community of Big Sky is here to support Dan and his family. We look forward to enjoying the festivities of Soul Shine ‘25 together on July 12th. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/8a8257d8-2ffc-41ab-8f42-cb72c07ced77/0718%252815%2529.jpg Home - Make it stand out We met Patrick Shaw, a young man from Island Park, Idaho who had been recently diagnosed with ALS at Soul Shine 2023. Last year, Patrick and his wonderful family joined us for a Big Sky Soul Shine show of love and support. Patrick inspired everyone with his positive attitude and heartfelt words. Patrick and his friends and family will join us again this year. A portion of the funds raised at SOUL SHINE 2025 will help Patrick and his family as they continue to navigate the affects of ALS. THANK YOU FOR YOUR SUPPORT! https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559284946-1S429WGVXXAVXVUZHVF6/IMG_2704.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559285860-NZOU4B80S9OJQDW7AE42/IMG_2685.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494780629120-D84M26I9BGNXETVKW0ZG/IMG_4452.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559293943-NMYOL2NEONGKCK0ZIL9C/IMG_2669.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559295939-V1SO41FX43J553Z3WEGO/IMG_2661.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559308477-AIU288W0IY84SD0RG1I0/IMG_2650.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559313635-DY1H4NJTCOB3M1XYOF6V/IMG_2592.jpg Home 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https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559560579-184K1JZJBKHLWLBFMM3Z/596D87AB-BB82-4DCB-904A-F47B82E08D2D.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559562693-Z73PTLDCOE53RXHK14H3/mark+with+morris+kids.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559572923-GP08GWZ2ODM4MI6FHQPV/mittlestaedt+family.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559571269-P75PCXRYA8XF3VCSCMHJ/mark+at+YNP.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1b226d81-84a8-4583-b0d0-ba04153c2fe1/tempImageJRUugH.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/976af794-7efe-41e4-b465-3e1d128f671d/Marty.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558042170028-YPRSKED04S8H1OVBDHLO/TeamGleasonLogo.png Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558042443322-9482Y77PVDD2MM6DECYG/SteveGleasonHeadshot.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558487424049-VEFGUBVP4CQ8C6XJ8MJR/1464230894254.jpg Home We never met Sarah but felt like we knew her from her open, honest, funny blog chronicling her 6 year journey with ALS. She passed away at the age of 40 in November of 2018. Read her blog and feel connected to this incredible family. We think Mark and Sarah are running in the same heavenly circles enjoying plenty of afterlife wine together. Learn more about Sarah and her efforts to help fund research to find a cure for ALS on our Take Action page. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558487645643-VEQMXU67FDLQFVTAVYVF/13613204_777404505735269_7695764060172677448_o.jpg Home Scott Matzka, former professional hockey player and a friend of Mark’s brother-in-law, created the foundation My Turn to raise awareness and funds for ALS support and research. He and his family also approached their experience with ALS with openness, sharing and a commitment to living life fully. Scott passed away at the age of 40 in December 2018 shortly after a film about his life was released. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558540012336-X3G2QGC4FIKH33CW62MK/IMG_4611.jpg Home Kit Watson was a part-time resident of Big Sky who found extreme joy in life and who fought her battle with ALS with dignity and grace. Her daughter and family live full time in BIg Sky. Kit and her family participated in fundraising events throughout Kit’s illness. Team Big Sky raised over $25,000 for ALS TDI in 2017. Mark and Kit enjoyed meeting at The Big Sky’s Farmer’s Market. Kit passed away in the fall of 2018. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1647029874214-G1XINJIOPOP06KM14ROS/Bob-2.png Home - Make it stand out University of Michigan professor, Bob Schoeni lived with ALS in his hometown of Ann Arbor, MI for about 13 years. When Mark was diagnosed, Bob and his wife, Gretchen shared a number of resources with the Robin Family. Bob lived a full, productive, independent life with ALS for as long as he could. His friends and community were inspired to create an organization to support efforts at finding a cure. Visit Ann Arbor Against ALS to learn more. https://bigskysoulshine.org/take-action daily 0.75 2024-06-26 https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/3ed11ad6-99e4-4d52-b434-63815b243d90/qr.jpg Take Action - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/9662cea8-c382-4627-83bb-4e3b2c5e3776/soul_shine_logo_2.png Take Action - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494771034206-PQID3JRTAMACPAZKP8RI/Team-Gleason-logo-new.png Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494770698162-SAPPBOJRJXHGJQYCAM70/TeamGleason.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558484788816-QZMLH3M2ZUHFYR1D0UWV/donate-button.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558489998096-VB0IGMQQW2LFXT3ECJSO/35682219_1832988516757233_7123033665042382848_n.jpg Take Action ALS Therapy Development Institute is a non-profit biotech company working tirelessly to find a cure for ALS. Sarah Coglianese was the founder of the #whatwouldyougive campaign which raised funds for ALS TDI. In 2017, inspired by Amanda Watson’s friendship with Sarah and her own mother’s battle with the disease, Team Big Sky, a collaboration between The Watson and Robin families helped raise over $25,000 for the campaign. We encourage continued support of ALS TDI. Your contributions can be made in honor of Kit Watson, Mark Robin, Sarah Coglianese or anyone you know affected by this disease. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558591831653-CC99W76HZTWTBQDRGF1Q/151020124216-01-sarah-coglianese-exlarge-169.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590380293-F04G3D5MZILYFJJBGX9H/IMG_4724.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590384019-3YKH6EXEV995E2Q30JBR/IMG_4732.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590396146-EWGX911KKKCJ0N0LRTA3/IMG_4734.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590400218-LMO02UEBFDNR9733QURP/IMG_4741.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590411666-GEGC5VO67CGP8NCONXDT/IMG_4745.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590404557-V53LWRAIYS3DQ3HKT4NJ/IMG_4758.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590410750-ZQ6NO61B2I23G8TEN9NJ/IMG_4759.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590413823-QZFKHW4481KL7BICNNP2/IMG_4761.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590811934-CNQMK53NE8P6HD6XLJA2/IMG_4745.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590816578-I00883D6DR0Z854SCQHC/IMG_4759.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590817371-AUO0OU4E7DGAC80KSXCH/IMG_4761.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558731374264-BSJCXD3APNNYRCEAXUAU/151020124308-06-sarah-coglianese-exlarge-169.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558731336949-8QNSMBA9N5WR4ZAHEO7P/coglianese_718x410.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558731398982-RUY45G1H574OSDMQX04W/2_2_61234_2_1_350x700.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1497041743522-IUB9L86GA4HEUZTNTC0K/alslogo-XX.gif Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494771849889-UA8UZ53QGV5ARU4XM1LM/mgh-logo-neurology-2x.png Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558729843556-RXJN59APGWRMYAY6ALKV/Eyegaze_Edge_Desktop.jpg Take Action ALS Society, Evergreen Chapter, addresses the real-life needs of the approximately 100 ALS patients in the Northwest, including Mark. They loaned us the bed and shower chair which made Mark’s life more comfortable as well as an Eye Gaze communication system (all denied by insurance). Regional chapters are an important source of practical information and personal support to families like ours. Once we tapped into Evergreen, we felt understood and had immediate needs met. Please consider funding this great regional resource. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558729786632-9SMUTAOXNXBD779N5A34/mgh-als-med-brand-canvas-492x328.jpg Take Action Dr. Merit Cudkowicz is a neurologist at Massachusetts General Hospital specializing in the care of PALS and is in active pursuit of new treatments. Her research is unique in that it focuses on a patient-centric approach. All PALS are eligible for the Phase 2 clinical trials of therapies that show promise. Supporting this research helps some PALS right now as well as encourages large pharmaceutical companies to come in and fund the final Phase 3 trials. We encourage support of Dr. Cudkowicz and her team of researchers. https://bigskysoulshine.org/press daily 0.75 2026-03-28 https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/7042dd45-dacd-4c4b-8a18-5bf5a31d34d5/Soul-Shine-2022-Janie-Bertelson-and-Jackie-Robin-Bella-Butler-photo-1-1536x1024.jpg Press - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/675c949d-fe5a-4326-a587-1fac57baef55/_JS_0537.jpg Press - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1667512632362-GJLGGO73ZY1Y4H3GTWIQ/22.06.23_SoulShine_804.jpg Press - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1667512049336-0Q1NCBB69E04N76NHTTB/Screen-Shot-2022-06-15-at-7.44.14-PM.png Press - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1560530065773-T069PAZW873V8WH1MJCP/Mark-Robin.jpg Press https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1560531559989-6CLAZW8LIIDN6WL21UY2/5d01545fe2289.image.jpg Press https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1529527158979-Z4DS0RIDFXPP5FHRNRCX/LPLimage2018.jpg Press https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1515958065398-ZAGVX0E3300JUSFFQIBO/IMG_0459.jpg Press https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1515958362598-ZSZWEESEIAWU1SY4VPIU/KlaudiaAndMark.jpg Press https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1497483868653-BBKXEO8ZDLCMJ1SVE9S1/Mark_Robin-1140x641.jpg Press https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1497284370999-0Y0YIRLJD8LAJUWC8KGF/Robin_Family_Yellowstone-e1496167639452-1140x641.jpg Press https://bigskysoulshine.org/2018-soul-shine daily 0.75 2021-07-15 https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558491642898-GBAL3O852SWZK37TLCGI/18.06.21_SoulShine_364.jpg 2018 Soul Shine https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558043442439-LRGNZRX9XAJHHY87X0Z5/18.06.21_SoulShine_009.jpg 2018 Soul Shine https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558043411656-L0KFJAFGEXVT1J3CFJB3/18.06.21_SoulShine_010.jpg 2018 Soul Shine https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558043481924-IN1H4D7UEI7F7PQ7J26E/18.06.21_SoulShine_011.jpg 2018 Soul Shine 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