https://bigskysoulshine.org/home daily 1.0 2026-06-23 https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1647027713154-TWUMIUP74VVOKA5RDELV/170622_174742__S027603.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/3a6d9470-dcdd-4aa3-94b2-97e9c0604513/SS26-tabloid-031126.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/96280815-aa10-46aa-b962-126e6dc3141e/qr-code.png Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/0a217d31-ff5d-4ce8-b070-284dec6ee444/unnamed.jpg Home - Make it stand out A couple of months ago, a young woman in Bozeman reached out to Big Sky Soul Shine to ask if it was possible to apply for funds on behalf of her close friend, Russell Conti. Russ was diagnosed with ALS in October 2022 and moved to Bozeman in April 2024 to be closer to his adult children, Brookelyn and Russell who are both students at Montana State University. Originally from Long Island, NY, Russ is a lifelong surfer. While his ALS primarily affects his legs and lower body, he has a goal to get back on a surfboard—a dream he is sharing with his kids and his close friend, Diya. At the end of July, the family is heading to Oahu, Hawaii to work with an adaptive surf organization to make this happen. Is Big Sky Soul Shine able to contribute to making this trip a reality for Russ and his family? Absolutely! This adventure is the exact definition of our mission statement—to help those living with ALS lead full, meaningful lives. We are also thrilled that our partnership with Team Gleason is contributing to this incredible journey. Before they head to the ocean, Russ and his family hope to join us for some pre-Soul Shine fun at Music in the Mountains on Thursday, July 9th. From there, they are hitting the road to South Dakota, where Russ is being honored for his extensive, impactful work with Lakota children and families. Russ dedicated his career to social work, spending the majority of it serving on the Pine Ridge Indian Reservation with Casey Family Programs and Lakota Oyate Wakanyeja Owickiyapi (LOWO), and later working as a social work consultant with Black Hills Dialysis. Nationally, Russ has also driven meaningful change through anti-racism facilitation and as a consultant for the National Resource Center for Tribes. We are so honored to support Russ and his family. Join us at Soul Shine 2026, and thank you for your incredible generosity! https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/83cd7767-cc6d-43a1-b51c-ec0b751d5dcf/DSC06697.jpg Home - Make it stand out Meet Greg Wermers and Katherine O’Hagen, Development Director of Team Gleason. Greg was diagnosed with ALS in September 2024 and found his way to The Big Sky Soul Shine Country Fair last year where we all became fast friends. Greg is an avid skier who has been skiing Big Sky Resort since the 1970’s. He now lives in Missoula but made his way to the slopes of Big Sky several times last season. Greg is very open about his journey navigating ALS. In 2025, shortly after Soul Shine, he and a group of friends walked to raise funds for the ALS Association of Montana. 40 of his closest friends, known as “The Merry Hanksters” were the top fundraisers! A few weeks ago, Greg and a few close friends trekked to Seattle and were invited onto the field during warm-ups for the MLB “Lou Gehrig Day”. Mariners against the Mets. We look forward to welcoming Greg and a few friends back to Big Sky for Soul Shine 2026! Yes, Greg there will be lemonade this year! https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/b18a246b-f5a5-4078-9c66-acaa96c77e92/Screenshot+2025-04-25+at+11.10.14%E2%80%AFAM.png Home - PHOTO BOOTH & MECHANICAL BISON https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/ea93212c-5d35-420a-8f68-987ba7528129/170622_173120_DSC_8655.jpg Home - Food, drink, games, face painting, activities, inflatables, dunk tank, prizes, music, swing dancing and more! https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/67f562d9-5145-495b-b8ac-f8acd57fe636/18.06.21_SoulShine_352.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/070ef2ca-7779-4fac-8bbc-a0e0052724c3/170622_173200_DSC_8663.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/279a5921-c008-4d37-881d-72ab9ede0a30/18.06.21_SoulShine_235.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/7d1c1e06-3f27-45b8-b5f0-b528672d1219/tempImageJlr2Gz.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/f61a1e9e-d37c-4c56-9330-a3d27886778e/Screenshot+2025-06-26+at+12.49.53%E2%80%AFPM.png Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/4a219ec8-ea99-4c00-84d7-6013a94ab836/IMG_7993.jpeg Home - Make it stand out This is Dan Hoadley, his wife, Vanessa and their children, Claire and Nick. Claire is a graduate of Lone Peak High School and a rising sophomore at Rocky Mountain College. She is studying Occupational Therapy and Business and is attending with an athletic scholarship to play volleyball. Nick is a rising junior at LPHS and in addition to being his sister’s loudest cheerleader loves basketball, camping, working out and being outside. Dan is originally from Michigan but has called Montana home for the last twenty-five years. He is the head of IT for Boyne USA, managing his department for all of Boyne’s resorts across the country from his home base of Big Sky. For the past three years, Dan, along with his family has been navigating the effects of ALS. What this means to the Hoadley family is to stay close to one another, to spend quality time together with their close family and friends, to work and enjoy the outdoors in their free time, to take meaningful family trips and to support Claire and Nick in all of their endeavors. Big Sky Soul Shine and the community of Big Sky is here to support Dan and his family. We look forward to enjoying the festivities of Soul Shine ‘26 together on July 11th. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/8a8257d8-2ffc-41ab-8f42-cb72c07ced77/0718%252815%2529.jpg Home - Make it stand out We met Patrick Shaw, a young man from Island Park, Idaho who had been recently diagnosed with ALS at Soul Shine 2023. In 2024, Patrick and his wonderful family joined us at our first stand alone event for a Big Sky Soul Shine show of love and support. Patrick inspired everyone with his positive attitude and heartfelt words sharing his messgae on the Soul Shine stage. Patrick is a proud Army Veteran and we thank him for his service. We hope Patrick and his family will be able to join us again this year! THANK YOU FOR YOUR SUPPORT! https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559284946-1S429WGVXXAVXVUZHVF6/IMG_2704.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559285860-NZOU4B80S9OJQDW7AE42/IMG_2685.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494780629120-D84M26I9BGNXETVKW0ZG/IMG_4452.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559293943-NMYOL2NEONGKCK0ZIL9C/IMG_2669.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559295939-V1SO41FX43J553Z3WEGO/IMG_2661.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559308477-AIU288W0IY84SD0RG1I0/IMG_2650.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559313635-DY1H4NJTCOB3M1XYOF6V/IMG_2592.jpg Home 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https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559560579-184K1JZJBKHLWLBFMM3Z/596D87AB-BB82-4DCB-904A-F47B82E08D2D.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559562693-Z73PTLDCOE53RXHK14H3/mark+with+morris+kids.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559572923-GP08GWZ2ODM4MI6FHQPV/mittlestaedt+family.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494559571269-P75PCXRYA8XF3VCSCMHJ/mark+at+YNP.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1b226d81-84a8-4583-b0d0-ba04153c2fe1/tempImageJRUugH.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/976af794-7efe-41e4-b465-3e1d128f671d/Marty.jpg Home - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558042170028-YPRSKED04S8H1OVBDHLO/TeamGleasonLogo.png Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558042443322-9482Y77PVDD2MM6DECYG/SteveGleasonHeadshot.jpg Home https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558487424049-VEFGUBVP4CQ8C6XJ8MJR/1464230894254.jpg Home We never met Sarah but felt like we knew her from her open, honest, funny blog chronicling her 6 year journey with ALS. She passed away at the age of 40 in November of 2018. Read her blog and feel connected to this incredible family. We think Mark and Sarah are running in the same heavenly circles enjoying plenty of afterlife wine together. Learn more about Sarah and her efforts to help fund research to find a cure for ALS on our Take Action page. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558487645643-VEQMXU67FDLQFVTAVYVF/13613204_777404505735269_7695764060172677448_o.jpg Home Scott Matzka, former professional hockey player and a friend of Mark’s brother-in-law, created the foundation My Turn to raise awareness and funds for ALS support and research. He and his family also approached their experience with ALS with openness, sharing and a commitment to living life fully. Scott passed away at the age of 40 in December 2018 shortly after a film about his life was released. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558540012336-X3G2QGC4FIKH33CW62MK/IMG_4611.jpg Home Kit Watson was a part-time resident of Big Sky who found extreme joy in life and who fought her battle with ALS with dignity and grace. Her daughter and family live full time in BIg Sky. Kit and her family participated in fundraising events throughout Kit’s illness. Team Big Sky raised over $25,000 for ALS TDI in 2017. Mark and Kit enjoyed meeting at The Big Sky’s Farmer’s Market. Kit passed away in the fall of 2018. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1647029874214-G1XINJIOPOP06KM14ROS/Bob-2.png Home - Make it stand out University of Michigan professor, Bob Schoeni lived with ALS in his hometown of Ann Arbor, MI for about 13 years. When Mark was diagnosed, Bob and his wife, Gretchen shared a number of resources with the Robin Family. Bob lived a full, productive, independent life with ALS for as long as he could. His friends and community were inspired to create an organization to support efforts at finding a cure. Visit Ann Arbor Against ALS to learn more. https://video.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/902c2d3b-317d-4a3c-9032-0c0ac44e849f/playlist.m3u8 https://video.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/902c2d3b-317d-4a3c-9032-0c0ac44e849f/thumbnail Home Soul Shine 2025! https://video.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/21d2bfe0-1111-4d4a-8056-af894e28cc01/playlist.m3u8 https://video.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/21d2bfe0-1111-4d4a-8056-af894e28cc01/thumbnail Home Home https://bigskysoulshine.org/take-action daily 0.75 2026-06-23 https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/87ed0758-5853-479c-9418-d96434114857/qr-code.png Take Action - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/9662cea8-c382-4627-83bb-4e3b2c5e3776/soul_shine_logo_2.png Take Action - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494771034206-PQID3JRTAMACPAZKP8RI/Team-Gleason-logo-new.png Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494770698162-SAPPBOJRJXHGJQYCAM70/TeamGleason.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558484788816-QZMLH3M2ZUHFYR1D0UWV/donate-button.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558489998096-VB0IGMQQW2LFXT3ECJSO/35682219_1832988516757233_7123033665042382848_n.jpg Take Action ALS Therapy Development Institute is a non-profit biotech company working tirelessly to find a cure for ALS. Sarah Coglianese was the founder of the #whatwouldyougive campaign which raised funds for ALS TDI. In 2017, inspired by Amanda Watson’s friendship with Sarah and her own mother’s battle with the disease, Team Big Sky, a collaboration between The Watson and Robin families helped raise over $25,000 for the campaign. We encourage continued support of ALS TDI. Your contributions can be made in honor of Kit Watson, Mark Robin, Sarah Coglianese or anyone you know affected by this disease. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558591831653-CC99W76HZTWTBQDRGF1Q/151020124216-01-sarah-coglianese-exlarge-169.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590380293-F04G3D5MZILYFJJBGX9H/IMG_4724.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590384019-3YKH6EXEV995E2Q30JBR/IMG_4732.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590396146-EWGX911KKKCJ0N0LRTA3/IMG_4734.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590400218-LMO02UEBFDNR9733QURP/IMG_4741.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590411666-GEGC5VO67CGP8NCONXDT/IMG_4745.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590404557-V53LWRAIYS3DQ3HKT4NJ/IMG_4758.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590410750-ZQ6NO61B2I23G8TEN9NJ/IMG_4759.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590413823-QZFKHW4481KL7BICNNP2/IMG_4761.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590811934-CNQMK53NE8P6HD6XLJA2/IMG_4745.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590816578-I00883D6DR0Z854SCQHC/IMG_4759.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558590817371-AUO0OU4E7DGAC80KSXCH/IMG_4761.JPG Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558731374264-BSJCXD3APNNYRCEAXUAU/151020124308-06-sarah-coglianese-exlarge-169.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558731336949-8QNSMBA9N5WR4ZAHEO7P/coglianese_718x410.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558731398982-RUY45G1H574OSDMQX04W/2_2_61234_2_1_350x700.jpg Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1497041743522-IUB9L86GA4HEUZTNTC0K/alslogo-XX.gif Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1494771849889-UA8UZ53QGV5ARU4XM1LM/mgh-logo-neurology-2x.png Take Action https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558729843556-RXJN59APGWRMYAY6ALKV/Eyegaze_Edge_Desktop.jpg Take Action ALS Society, Evergreen Chapter, addresses the real-life needs of the approximately 100 ALS patients in the Northwest, including Mark. They loaned us the bed and shower chair which made Mark’s life more comfortable as well as an Eye Gaze communication system (all denied by insurance). Regional chapters are an important source of practical information and personal support to families like ours. Once we tapped into Evergreen, we felt understood and had immediate needs met. Please consider funding this great regional resource. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1558729786632-9SMUTAOXNXBD779N5A34/mgh-als-med-brand-canvas-492x328.jpg Take Action Dr. Merit Cudkowicz is a neurologist at Massachusetts General Hospital specializing in the care of PALS and is in active pursuit of new treatments. Her research is unique in that it focuses on a patient-centric approach. All PALS are eligible for the Phase 2 clinical trials of therapies that show promise. Supporting this research helps some PALS right now as well as encourages large pharmaceutical companies to come in and fund the final Phase 3 trials. We encourage support of Dr. Cudkowicz and her team of researchers. https://bigskysoulshine.org/press daily 0.75 2026-06-05 https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/f37ae0c0-b52e-48e2-9a85-fcccb7cb8b7e/Dunk-tank-1536x1015.jpg Press - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/7042dd45-dacd-4c4b-8a18-5bf5a31d34d5/Soul-Shine-2022-Janie-Bertelson-and-Jackie-Robin-Bella-Butler-photo-1-1536x1024.jpg Press - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/675c949d-fe5a-4326-a587-1fac57baef55/_JS_0537.jpg Press - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1667512632362-GJLGGO73ZY1Y4H3GTWIQ/22.06.23_SoulShine_804.jpg Press - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1667512049336-0Q1NCBB69E04N76NHTTB/Screen-Shot-2022-06-15-at-7.44.14-PM.png Press - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1560530065773-T069PAZW873V8WH1MJCP/Mark-Robin.jpg Press https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1560531559989-6CLAZW8LIIDN6WL21UY2/5d01545fe2289.image.jpg Press https://images.squarespace-cdn.com/content/v1/59150ca815d5db80ed836aa3/1529527158979-Z4DS0RIDFXPP5FHRNRCX/LPLimage2018.jpg Press 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difference.