“The disease is dark, but the outpouring of love and support for our family has been nothing but light-filled. We are overwhelmed.” 
Jackie Robin

In December 2017, we lost our beloved Mark Robin to Amytrophic Lateral Sclerosis (ALS), also known as Lou Gherig’s disease. During our journey, the Robin family, along with their close friends, family and the community of Big Sky, have learned first hand the devastating effects of this disease on a previously very healthy individual. The inspiration for the name Soul Shine came from one of many hand made cards Mark has received from local kids who know him as Marky Moose. It read, “You have Soul Shine. I love you.” 

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